Thursday, April 18, 2013

April 18, 2013

SD began Maintenance cycle 4 today! Going into it we weren't certain whether he'd be able to have his procedures done because of the cough he's had for a couple weeks. It's been gradually getting worse over that time and he spent a lot of the night last night coughing. After listening to him this morning, the nurse ordered x-rays of his chest and sinuses to make sure sedation would be safe. Thankfully he was cleared for all procedures and everything went smoothly.

His counts have continued to improve since Monday, so he is going back on his oral chemo starting today. Some of his dosages have actually increased because he's reached a new weight bracket. He'll need counts rechecked in two weeks to make sure he's handling everything. He has gone through the whole accessing ordeal four times in just under two weeks, which is pretty hard on him; even when he just has a blood draw through his port and no chemo, it takes a lot out of him.

After clinic today we brought the kids and Grandma Cleary to the butterfly exhibit at the Frederick Meijer Garden. It was a short trip due to rain, but quite enjoyable for all!

Monday, April 15, 2013

April 15, 2013

SD is off chemo until further notice.

It all started about 2 weeks ago. It's sometimes hard to tell when SD is pale because he is such a fair-skinned boy to begin with, so we go by his nails and lips. When his lips turned pale after two days of pale finger and toe nails, we decided to have his blood counts checked.

His hemoglobin level had dropped to 8.6, so that would explain the paleness, but it wasn't low enough for a transfusion. All of his other counts were solid, which was quite encouraging; we thought that maybe he was starting to handle 6-MP at full dose at last!

DeVos wanted a recount one week later. By then SD's color had returned so we were completely surprised by the results. His hemoglobin was now 8.1 and all his other counts had plummeted into the severely neutropenic levels. Because of this, SD was taken off chemo for an undetermined length of time.

We had him checked yet again the following Monday (the 15th), and there was not much difference in his numbers, but every area had gone up. What a relief!

SD waiting for his counts on Monday.
After being accessed for the third time in ten days, he's rather weary of it.