SD is off chemo until further notice.
It all started about 2 weeks ago. It's sometimes hard to tell when SD is pale because he is such a fair-skinned boy to begin with, so we go by his nails and lips. When his lips turned pale after two days of pale finger and toe nails, we decided to have his blood counts checked.
His hemoglobin level had dropped to 8.6, so that would explain the paleness, but it wasn't low enough for a transfusion. All of his other counts were solid, which was quite encouraging; we thought that maybe he was starting to handle 6-MP at full dose at last!
DeVos wanted a recount one week later. By then SD's color had returned so we were completely surprised by the results. His hemoglobin was now 8.1 and all his other counts had plummeted into the severely neutropenic levels. Because of this, SD was taken off chemo for an undetermined length of time.
We had him checked yet again the following Monday (the 15th), and there was not much difference in his numbers, but every area had gone up. What a relief!
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