Today SD was in some pretty severe pain. He had been on Tylenol pretty much constantly so far, but today we had to step it up to morphine. The Tylenol just wasn't cutting it.
In this picture, SD is sitting up watching a movie. He wasn't able to sit up most of the day, and would just lay back on his bed watching a movie instead.
He was very irritable today. Of course, he was in so much pain... He wouldn't allow us to read to him, or talk, or touch him (except he would want his hand held when they took his blood pressure). He had a pretty bad headache, including light and sound sensitivity. So we spent pretty much the whole day just watching movies with most of the lights off and the volume really low. Also, he didn't want to watch any of his favorite movies (which we brought along on the laptop); he only wanted to watch movies on the big hospital TV. So he got to see some movies we wouldn't have normally allowed, such as "The Adventures of Elmo in Grouchland."
Throughout the day today, SD would almost constantly say "foo," meaning that he was hungry. But no matter what we offered, he could not eat it. He would get agitated when we didn't offer the right food (and there didn't seem to be a "right food"). If we kept offering different foods, he would only get more agitated. So after a while we settled into a pattern:
SD: "Foo?"
Stephen: "Do you want some <type of food we had>?" (showing it to him)
SD: (agitated) "No! Foo!"
Stephen: "Okay." (does not offer more food)
SD would usually repeat the routine until we had cycled through every type of food we had there, and then would lapse into silence for a few minutes. This continued throughout the day, unless SD was sleeping or had found something he could eat at the moment.
However, he did hold hands with Mandy to pray over his food.
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